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Rare Diseases

At Shree Narayan Blood Group, we organize specialized blood donation drives focused on supporting individuals battling rare diseases. Our mission is to raise awareness, build a committed network of rare blood type donors, and ensure timely, lifesaving support for those who need it most—fostering a spirit of compassion and community care.

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Supporting Patients with Rare Diseases

At Shree Narayan Social Trust Blood Bank, Pitampura, we are committed to addressing one of the most overlooked challenges in modern healthcare—providing support to patients living with rare diseases. These conditions often require complex, long-term treatment and regular transfusions involving rare blood types that are not easily available in conventional blood banks.

Recognizing this urgent need, our trust has developed focused initiatives to build a strong and reliable network of rare blood group donors. We maintain an active and verified donor registry, ensuring that blood for rare phenotypes like Bombay blood group, Rh-null, and others is accessible when every second counts. Our team works round the clock to match donors and patients in real-time, providing crucial support during surgeries, emergency cases, and specialized treatments.

Our outreach extends beyond blood banking. We collaborate with hospitals, research organizations, and rare disease advocacy groups to increase awareness, educate the community, and support policy-level change. Many families struggle in silence—our aim is to give them a voice and a dependable partner in their journey.

We conduct awareness drives, seminars, and counseling sessions for families affected by rare conditions such as thalassemia, hemophilia, sickle cell anemia, and other inherited disorders. We help them understand their rights, treatment options, and the importance of pre-registered blood support.

With the help of our dedicated volunteers and donors, we have supported numerous critical cases that required rare blood components. Each successful case reinforces our belief that a prepared, informed, and connected community can overcome even the rarest medical challenges.

We invite individuals with rare blood groups to join our life-saving registry. Even a single unit of blood can make an extraordinary difference. If you or someone you know is living with a rare disease and needs long-term transfusion support, Shree Narayan Social Trust is here to help.

Together, we can create a future where no patient is left waiting due to rarity. Let’s bridge the gap between need and availability through compassion, awareness, and collective action.

Support rare lives. Join the rare donor movement with Shree Narayan Social Trust Blood Bank, Pitampura.

Support for Rare Diseases